Privacy and Confidentiality in Research

This factsheet was created by Inuit Tuttarvingat of the National Aboriginal Health Organization.

HERE’S HOW THE AUTHORS DESCRIBE THIS FACTSHEET:

In collaboration with regional and national Inuit organizations, an advisory group was formed in 2008, to discuss research ethics protocols and develop informative materials on research ethics. This committee is named Inuit Nipingit – National Inuit Committee on Ethics and Research.

This factsheet explains that researchers are required to have informed consent from research participants. The researcher needs to include information on how personal and private information or knowledge will be used now or later on, and how it will be protected and stored. Terms such as ‘secondary use’ and ‘accidental disclosure’ are also explained, along with other issues to be aware of.

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